FIX IT

We are now 3 weeks into this phase of the journey with Brylee and still do not have definitive answers.  How is that possible with all the medical technology today and all the advances in the medical field?  The doctors have ruled out a lot of items that could be issues, but they have no real idea how to “fix” what is going on with Brylee.  Brylee was able to come home for a few hours on Thanksgiving Day and it was awesome!!!  Our family was together again.  Even if it was only for a few hours, our family was together outside of a hospital. 

 

Brylee outside the hospital seemed a lot like Brylee inside the hospital.  The question begged to be asked, “Why are we keeping Brylee at the hospital?”  That question was discussed at lengths at our house Friday through Sunday.  The sobering reality of the situation set in over the weekend; without the doctors, nurses, and everyone else being able to monitor Brylee every second of every day, they would not know what to try next.  With the issues Brylee faces, I’m not sure there are absolutes.  To me, it’s a lot like managing a baseball game as a coach.  Every single game I coach, there are so many variables to deal with, and at times it seems impossible to account for every single variable.  The best thing I can do to prepare for a game is think through and plan out for all of the known variables and attempt to anticipate some of the unforeseen variables.  Case and point, when do I put in my relief pitcher, when he is throwing great but seems the other team is starting to hit his pitches, should I bunt a runner over to the next base or steal the base, should I hit and run with the hitter at the plate (does he pop the ball up a lot, does he swing through a lot of pitches, does he hit the ball on the ground, does he have good bat control, etc.), should I send the runner home or try to take the next base (what is the outfielder’s arm strength/accuracy, can they relay the ball quickly, what is the speed of my runner, etc.), and this list could go on forever!!!!!!!!!!!!  Hopefully this gives just a glimpse at the (literally) thousands of decisions I have to make coaching a sport, but let me translate that into Brylee's situation.  The doctors have literally thousands of decisions to make about Brylee's situation.  I’m sure that the decisions are not apparent to me, but to the doctors, they are trained to know what questions to ask, what scenarios to think through, what things to anticipate, and what to do with each scenario.  The sign of a good doctor is that they are not caught off guard and stay calm so they can make good decisions.

 

Of course, we are still no closer to an understanding of why this is happening or what the outcome will be (which is frustrating as all get out), but we try to keep our focus on the fact that God did not say “Oops” when he made Brylee.  Her birth was a miracle and a perfect plan.  I just wish God would clue us in on the Master Plan (a chuckle would be appropriate here) J.  We know God’s plan is perfect in thought, but I have to admit that when you actually are faced with a situation that challenges your perception of that thought, it is very difficult.  Our family would ask that all of you continue to pray for Brylee, but for us and the doctors as well.  Our request is that the prayer be for wisdom on the part of us and the doctors, strength for our family to endure this challenging time, and perseverance to keep our focus on Christ our Lord who is the author of our life.  Also, our prayer is that the Lord would continue to use this situation as an opportunity to reach out to those we come in contact with to share the love of Christ with them.